Let's chat

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Re: Let's chat

Message  Nathalie38 le Mer 4 Nov 2009 - 9:44

Hello Anne !

Not fallen from the bed but almost yes! Slept Very badly & got up at 4:30 am this morning...

I hope that Emma's treatment is going to continue to relieve her.

Look after yourself too after Anne ! What a hard time indeed for a professor to have no more voice !
Lots of big kisses and talk again soon

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Re: Let's chat

Message  sonny le Sam 7 Nov 2009 - 4:26

Hello!

Here is the same, pain, some of the time, worse them other.

Sorry to ear that you don't feel great Nat & anne Crying or Very sad, I hope you'll get well soon both of you.

Snow is already starting to fall here. I can't wait to see every thing turn to white it's so nice, specially the first big snow fall, HAaaa! snow every where on the ground, on the cars, specially on the tree branches, Mmmmmmmmmmmm!!! make's me think of Chrismas santa.

I don't know if you have the same craziness in Europe, but here the A H1N1 flu is crazy, every one whant to be emmunized.

I'm in vacation for 1 week & 2 days, starting today, that give's me 5 weeks vacation all together for this year. Wow! that last week I don't know what I'm going to do because this week vacation was not planed to be taken before next year, & I though that we where not supose to take more then 4 weeks vacation in 1 year. So any sugestion not to expensive of what to do this week? scratch lol!
You don't need to answer that lol!

Read you soon... study

Love

Sonia

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Re: Let's chat

Message  anne le Sam 7 Nov 2009 - 10:59

Hi Sonia,
great to hear from you cheers
An unexpected week's holiday... I'm sure you don't need any help to find what to do really Wink
I'm not sure that I'm as keen on snow as you are...it's nice to look at but I'm not so happy about driving in it!! I'm all for a nice temperate climate, not too hot, not too cold, not too humid... Smile

Over here in France, there's trouble at the mill (as they say in Yorkshire!). Hospital Bichat in Paris (which up to recently been the place 'specialising in SAPHO care) has reorganised the outpatients & Dr Hayem has been pushed out so SAPHO sufferers are no longer on his books when they go in for an outpatients appointment. There seems to be all sorts of political manoevers going on - none of which are positive for SAPHO research or ongoing care & treatment.
So, after trying a 1st attempt at negociation we have declared war to defend our rights & protect the only 'centre' we know of where SAPHO Syndrome is understood, & where a large number of sufferers (more than 200 & growing) are treated well & listened to.
If the hospital wins we will all lose out because the research into SAPHO Syndrome at Bichat will lose its momentum (Dr Hayem cannot be in 3 places at the same time & that's what they're are telling him to do).
I'll be translating the minutes from the meeting with the hospital administration shortly & we are setting up a petition & a collective action with other pathologies treated by Dr Hayem.
International support would be welcome ... I know that Drs have contacted Dr Hayem from all over the world to get advice for their patient's with SAPHO.
Watch this space for more information!

Take care Sonia
love
Anne flower

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Re: Let's chat

Message  Nathalie38 le Mar 22 Déc 2009 - 7:35

Hello to all,

I wish you very good Christmas and new Year holidays, as well as a little early

Anne, Sonia, Stefan, thank you for making live this place by all your small daily messages, with your cheerfulness, and your small words always filled with happiness and with friendship for all.

I hope that you are well ? We do not have news anymore...


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Re: Let's chat

Message  Nathalie38 le Dim 3 Jan 2010 - 20:04

Very happy New Year to all !

I hope that you are well, Anne, Sonia ... ?

Lots of big

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Re: Let's chat

Message  anne le Mar 5 Jan 2010 - 18:28

Happy New Year to everyone,
I hope all your wishes come true & that SAPHO gives you some peace.
Did anyone make any good resolutions?
We're having a real winter here - Sonia - you could almost believe we were in Quebec. Unlike my friend who had a barbeque on the beach for Christmas day in New Zealand - it made me think of you in Australia Stefan.
Bye for now

Anne

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Re: Let's chat

Message  Nathalie38 le Sam 7 Aoû 2010 - 8:02

Hello Sonny,

As usual my English is very school ! Razz

I come to get your news, it has been months since I heard from you.

How are you? I hope to read you very soon.


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Re: Let's chat

Message  Nathalie38 le Jeu 5 Sep 2013 - 8:35

Hi Carrie !

Welcome among us.
We're several to speak and to write English, also we can answer you with no problem at all.
If you need help on the forum, or the questions... don't hesitate to request me.
See you soon Wink 

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Re: Let's chat

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